关键词: 膀胱癌, 回肠膀胱造口, 互联网+, 自我管理模式, 生活质量, 并发症

Abstract: Objective To explore the effect of Internet + self-management program on the quality of life of in patients with bladder cancer undergoing ileum cystostomy during the continuance period.
Methods In this study,non-contemporaneous controlled tests used.Sixty-three patients with bladder cancer who underwent ileostomy in the urological ward of a third-grade a general hospital in Chengdu selected as the study subjects.Patients who met the criteria for admission from March 2019 to September 2019 assigned to the control group,and those who met the criteria for admission from October 2019 to April 2020 assigned to the intervention group.Patients in the control group received routine nursing measures during hospitalization,and received routine telephone guidance at 4th week after discharge.In addition to conventional nursing measures,patients in the intervention group also received Internet + self-management mode during hospitalization and 4 weeks after discharge.They followed up by telephone every week to receive periodic answers and personalized and positive motivational guidance.If patients raised questions and gave answers,the research group increased the number of telephone visits and followed up the results.General data questionnaire,Stoma-QOL and Out-of-hospital Complications Record table used for data collection.
Results The total quality of life score of the intervention group 4 weeks after discharge was significantly higher than that of the control group,and the difference between the scores of the two groups was statistically significant(P<0.05).Four weeks after discharge,the scores of sleep,relationship with family(friends) and other social relationships with non-family(non-close friends) in the intervention group were better than those in the control group,and the differences between the two groups were statistically significant(P<0.05).There was no significant difference in the scores of sexual life between the two groups(P>0.05).Four weeks after discharge,the number of complications in the intervention group was significantly lower than that in the control group,and the difference was statistically significant(P<0.05).There were 3 cases of peridermatitis of stoma in the intervention group and 11 cases in the control group,and the differences between the two groups were statistically significant(P<0.05).There was no significant difference in the incidence of urinary tract infection,ureteral stent detached,and stoma bleeding g(P>0.05).
Conclusion The application of the Internet + self-management program can effectively improve the quality of life of patients with bladder cancer undergoing ileocystostomy and reduce the occurrence of complications.

Key words: bladder cancer, Ileum cystostomy, internet+, self-management program, quality of life, peridermatitis